Days like today, just a little tougher than usual

I want to tell you a little something of what a day that is just a little tougher than normal is like when your child has additional needs.

It starts with a breakfast that many parents can relate to; a child that doesn’t want to eat their Shreddies. The patience wearing thin, the tiredness kicking in. But this boy, who is strong and brave and doing so well, is nearly six years old and doesn’t have the vocabulary to tell you any of what he’s feeling. Everybody just has to get on with it. And everybody hurts a little. We press on.

The day goes on and your wife, who lives, breathes, fights step by step alongside the growers in our family holds back the tears. Fighting in the workplace to hold it together because the wonderful, inspiring reading material about inclusion in churches is a precious gift, but it also tears a knife through your heart. 

Why? 

Because church should know better. Church should do better than to obstinately refuse to budge to care for the least of these. It doesn’t seem to matter that the King we serve instructs us to care for the least of these.

We make excuses where there are none. 

We forgive again because we forgive again.

But I don’t want to see my wife’s heart breaking over the lack of care for the least of these.

While she sweats tears over how to help just one or two children the response has too long been “there’s only so much we can do”.

It’s worse still when this fight plays second fiddle to other things; arguments over women in leadership;  being on enough rotas to truly be committed; not shopping at amazon because they squeeze out the little guy. Well this little guy has been squeezed out of so many places and relationships and groups and cliques that this time, one more birthday invitation passed under his mother’s nose burns only slightly more than the last time.

The day goes on and reading about the patient, gentle, painfully slow conversation about a new test that will rid the world of the scourge of Down’s Syndrome makes me weep once more. The conversation is patient solely because it has to be balanced against a women’s right to choose. Nobody wants to offend or say the wrong thing when fighting for children with disabilities because the mother still gets the right to choose. And I have to keep quiet even though if we go down the Iceland route there will be no more people with Down’s Syndrome. My baby isn’t valuable enough to this world to be fought for other than patiently and gently. 

Tell me, would you fight for yours patiently and gently?

The day goes on and this boy, who has to fight with all he has to keep his muscles and his brain working to even come close to staying so far behind that he is drained, shattered. He still can’t tell you though. He has to rely on us to know. We just have to know. 

But we don’t always know. 

He desperately wants to play with his friends and run after them but here’s the rub, he simply doesn’t know that if he turns the wrong way and there’s a car coming … that’s that. 

So his mum gets upset with him.

And so he gets upset. He fights through and gets tired, frustrated, sad, lonely. 

And we get tired, frustrated, sad, lonely. 

Sometimes he gets the tough end of it. 

And that’s not right.

Brothers and sisters, please hear this truth; it’s not ok to say that you will do what you can in your church family and then put no time, no money, no resources, no prayer, no acknowledgement, no leadership, no accountability in place. 

Inclusion is not an optional ministry. 

You have a heart for students? Wonderful.

You see the need to reach other religious communities? So precious.

But the marginalised and the poor, the weak and the lonely, the disabled and the helpless? They’re not on your options list. They’re on your commanded list.

The least of these. The least of these. 

Not the best of these. 

Not the most educated of these. 

Not the richest of these. 

Not the most physically able of these. 

Not the fastest of these.

Not the most eloquent of these.

Not the most useful of these.

Not the ones who fit in the social church norms.

Not the ones who can serve the most.

Not the ones who can be moulded to suit the needs of the church best. 

None of these. The least of these. 

On a day like today we strive, force ourselves to remember the truth of who our King is and what he values and cherishes.

We acknowledge the failures of ourselves and those around us to love the least of these. We beg forgiveness for all we’ve done to feed the lie that the least of these don’t matter.

We give kneeling thanks to our King that there are those amongst Jesus’ followers that see the least of these as Jesus sees the least of these.

Not as a burden. 

Not to be dismissed.

Not unworthy of investment.

Not to be extinguished.

Not as unloveable.

Not to be wiped from the face of the earth.

But as treasure. 

As inheritance. 

As co-heirs. 

As precious. 

As beautiful. 

As valuable. 

As loveable. 

As sons and daughters of the King of Creation.

As children of God.

9 thoughts on “Days like today, just a little tougher than usual

  1. Mark Arnold

    Wow, just wow… that is so powerful, resonates so much… Thank you for wonderfully articulating what so many of us feel. Feeling inspired to strive even more… that when we pray “Your kingdom come, your will be done on earth as it is in heaven” that means for everyone. Everyone. Thank you!

  2. Anne

    I know how this feels Ian & Nicole, to fight with your last breath for the child who can’t do it for themselves. These children are so precious, yours is, ours is, they all are.
    Come and have a play date, we are very all inclusive here!
    And come to messy church – a different congregation from the regular church – and you will all be made SO welcome. Msg me! Xx

    • Ian Richardson

      Would love to see you all Anne! 😀
      We’re blessed and in a hugely lovely church that are working incredibly hard to get it right. It would be wonderful to see you though. You still have my number?

  3. John Williams

    Powerful words and thoughts Nicole! Ian, the kids and Yourself do an amazing job with Arron. I love the passion in this blog, it’s not filled with bitter words but a sincere plea for all Churches to empower and welcome all regardless of ability or little ability, rich or poor. I hope This is looked at by many, and inspired to change!

  4. Simon James

    You walk the walk, like us all in similar circumstances. ‘Days like today’ is a good honest piece. It’s reminded me of the ‘footprints’ parable of the beach where parents and children alike are been carried without the act being seen. Thanks for reminding me.

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